The Alliance for Citizen Directed Supports opposes the newly announced HHS decision to delay the implementation of the Home and Community Based Final Rule

This week’s Ripple is about conquering fear.

Recently, Values learned that we lost someone who taught support coordination a lot about fear. She was the epitome of the person who was keeping it together by a shoestring, and at any time, we knew that things might fall apart. Her fierce independence and literal demands to us (e.g. “Don’t you DARE call my sister-in-law!”) taught us a lot about the balance between health/safety and right to self-direction. Every time I pulled away from her house, I’d think “Please keep it together”. And she did, until she couldn’t keep it together anymore. And maybe it’s just that simple. Enjoy the read on fear, and if you are feeling particularly brave, break away from the rigors of the day to watch the video link at the bottom. It’ll make your spirit brave.

Click here for this week’s Ripple.

From Patty Kowalchuk Values into Action – New Jersey Managing Director

When it comes to Paul, The Ripples Guy, and his Ripples, I’m starting to feel a little like Michael Corleone in The Godfather III: “Just when I thought I was out, they pull me back in.” This week’s Ripple has might as well have been prefaced “Hey, you – NJ VIA – read this!” What great prescriptive wisdom it holds for each of us going through the tremendous changes in New Jersey.

Ride that wave and enjoy this Ripple!

Click here for this week’s Ripple.

 

Values Into Action Co-Founder& Executive Director appears on Comcast Newsmakers. She sits down with host Jill Horner to discuss Disability Rights and Self-Directed Services.

Watch the segment HERE.

from Patty Kowalchuk Values into Action – New Jersey Managing Director

Recently, I had the great fortune of getting away for a few days to attend ski races. Part of that trip enabled me some time to ski, and I had the terrific luck of skiing with parents who I’d known for a long time but never really did anything with – we exchanged smiles and pleasantries in the lodges along the way, but that was it…until this weekend. I skied with a small group of parents who are all much better skiers than I, and skiing with them gave me confidence and brought my game up a notch. Imagine that? Last time we will ever be in that particular grouping (my son graduates this year and will be off to college – with any luck), but it was some sort of synchronicity that made the pieces come together this time. It was great. I hope you find your meaningful connections, which are seemingly inexplicable, this week!

Click here for this week’s Ripple.

by: Jeremy Einbinder

It’s well established that the rights of people with disabilities can be heavily tied to public policy and government activity.  People with disabilities, who continue to be at risk of discrimination and exclusion, must not be forgotten.  One of the most fundamental ways in which people can adequately participate in society is through education.  It is sometimes forgotten, however, that not everyone learns in the same way or using the same methods.  Of course, education, whether formal or informal, is valuable in all forms.

Luckily, society and the government have largely recognized the right of people with disabilities to learn.  However, it is a delicate right that must be protected at all costs, as the ideological views of any given administration may lessen or outright destroy it if the public is not vigilant.  Prior to the passage of the Individuals with Disabilities in Education Act (IDEA), it was common for children with any variety of disabilities to be deemed “unteachable”.  Thankfully, this is no longer the case, at least not in any official capacity.

That is why it was especially disappointing when, during the recent confirmation hearing of US Dept. of Education Secretary, Betsy DeVos, it was clear that she either believed that the enforcement of the IDEA should be enforced on a state-by-state level, or even worse, that she was not aware that the law even exists.  This kind of passive ignorance is not a good indication that the educational rights of children with disabilities will be protected in the coming years.

This raises an important point about the status of disabled people in the education system.  It may not be allowed for a school district to officially exclude someone from enrollment on the basis of disability, but regulations can remain unenforced if those overseeing the system don’t care to enforce them.  If the appointment of a US Secretary of Education who has never taught in or even attended a public school is any indication, it is not a stretch to worry whether the IDEA will be as protected as it once was.

One of the most important aspects of the IDEA is the mandate of the right to free and public education for children with disabilities.  In essence, a public school district is not allowed to refuse a student with a disability.  Every effort must be made to ensure that every child has an equal opportunity to learn.  School districts must also ensure that students with disabilities be integrated with their typically developing peers, in a provision known as “least restrictive access”.  Children with disabilities, the IDEA mandates, must not be prevented from learning alongside typically developing children, and must still retain the rights to their individualized education.

Individualized Education Programs (IEPs) specify that if a child has a disability and needs special education services because of their disability, a plan must be laid out which accounts for accommodations that the child needs in order to be adequately educated.  This is written by the child’s parents, teachers, and a variety of experts in the field of education.  All to ensure that a disabled child’s education is adjusted to their needs.

Despite all of this, there is one crucial circumstance on which the rights of children with disabilities hinge: Public schools must be thoroughly funded and well-monitored.  Secretary DeVos, however, is a prominent advocate of defunding public schooling in favor of an increase of private schooling instead.  She, and many people who agree with this viewpoint, refer to this as “school choice”.  The fact that there are some instances of sub-par public schooling in America is answered by Ms. DeVos and others with proposals to increase private and charter schools across the country.  Granted, there are aspects of the public education system in America that are problematic.  But the solution is not to weaken them.

The glaring problem with Ms. DeVos’s ideas is that private schools would not be required to abide by the standards of free and equal access to education for children with disabilities.  They would not be required to build IEPs, nor would they be required to ensure that children with disabilities learn alongside their typically developing peers.  In fact, it is entirely possible that a private school without the necessary investments set aside to ensure accommodations for students with disabilities may choose to not admit such students at all if they are viewed as too “burdensome”.

The families of children with disabilities tend to have less disposable income than the average American family, so not only would cuts to public education hurt them the most, but could very well make many students with disabilities once again “unteachable”.

Theoretical access to a basic right is useless if someone cannot afford it, or if no one makes sure it is carried out correctly.  There are problems in the funding of public schooling in America.  But the problems in education won’t go away by making public schooling less available.  In order for education to be a truly universal right, every effort must be made to make sure funding is equally distributed.  To strive for a fair and equal society, public education must be maintained.

Making it more difficult for children with disabilities to learn among their peers will only further marginalize them.  Strong and comprehensive public education suited to their needs can liberate them.  And that which can liberate the most vulnerable in society can liberate society as a whole.

Editor’s Note:  As with all contributions to the Disability in Focus blog, expressed opinions are not necessarily those of the Council’s membership. The NJCDD welcomes active conversations around issues important to people with developmental disabilities in New Jersey. We hope you’ll join the conversation in the “Comments” section below.

from Patty Kowalchuk Values into Action - New Jersey Managing Director

Here in NJ, we are faced with lots of challenges as we grow, change, and evolve in an ever changing system. It’s good to be reminded that struggles are part of the journey. Do yourself a favor and read this week’s ripple – it’s an attitude changer!

Click here for this week’s Ripple.

Governor Kim Guadagno addressed members at a Meet the Policymakers event last month during the Chamber of Commerce of Southern NJ luncheon.

Heather Cooper, Resource & Development Director from Values into Action, NJ attended the event.

from Patty Kowalchuk
Values into Action - NJ, Managing Director

When I was a kid, I asked a lot of questions. I have a memory of my grandmother asking me why I was asking her so many questions (how’s that for irony?) I also remember my mother demanding to know why I always had to ask so many questions (perhaps even more ironic). Looking back as an adult, it’s likely that at least some of their pushback to my questions must have been because they didn’t have the answers, or perhaps they did and didn’t want to talk about it, or perhaps there was a “need to know” basis where I was on the outside looking in. Whatever the case, I certainly trust that their responses (questions) were coming from a loving place and that they were not trying to be unkind. This week’s ripple talks about the importance of questions and that not all questions have immediate answers. Maybe some questions never get answered. When they get asked, however, they lead to growth. Enjoy!

Click here to read this week's Ripples.

We're excited to share that a mural created by Values Into Action, along with the Burlington, NJ community, is on display through the end of December at the Library Company of Burlington. The mural project theme is "What community means to you in a picture."

Great job to all the wonderful artists who participated in this project!

If you can, stop by and see the mural for yourself.  Click here for library location, hours, etc.